Down's Syndrome Testing

This App is a Patient Decision Aid designed for pregnant women and their partners who have been given a result from screening which indicates that they have a higher chance of having a baby with Downs syndrome. The next step is to decide whether or not to have a test which will provide a definite diagnosis
Traditionally people relied upon their Healthcare Professionals to make the most appropriate decision. However as medicine has progressed it is no longer always a decision based on the Healthcare Professionals preference only. Patient decision aids are a useful tool when there is a decision to be made about medical advice from the Healthcare Professional but also incorporating the patients’ preferences and concerns.

In order to enable patients to reach a decision in partnership with their Healthcare Professional it is important that they have access to information about the different options and have the opportunity to work through the information and evaluate the risks and benefits when viewed in conjunction with their personal values and preferences.

This patient decision aid assists patients to progress through it in an ordered fashion, having a number of distinct elements to the decision making process which support the patient in reaching a provisional decision which they can then discuss with their Healthcare Professional.

Firstly the aid provides information about Downs Syndrome in order to facilitate better understanding. The description is supported by an animation.

The options of having a test or not and the two available tests are then displayed providing the patient with an explanation of each which can be easily compared.

The third element of the decision aid then invites the patient to answer some questions which require him/her to consider what his or her values and preferences are when considered alongside the consequences.

Once the patient has considered these questions the preferences they have entered are displayed back to them in the order they have input and information regarding each of the preferences is displayed alongside it so that the patient can fully understand which of the options is most likely to fulfil their preferences.

Finally they are presented with the information they have said is their preferred option and they are encouraged to then discuss that with their Healthcare Professional so that an agreement can be reached and plans made.